Soldier's Wife Fights For Daughter's Meds
Girl Has Dravet's Syndrome
Reported By Forrest Sanders
A Fort Campbell soldier's wife said her long fight was worth it. The mother wrote congressmen, senators and mayors to get help for her daughter's rare medical condition.
"If you have a child with special needs, don't give up," said Felicia Harris.
She and her husband were married after being high school sweethearts. Three years ago, they welcomed their daughter Lexy -- a happy baby suffering a rare syndrome.
"They did the blood test, and it came back, and she did have the gene," Harris said. "It's genetic. Hers is a mutation."
It's called Dravet's syndrome.
"It's just a severe type of epilepsy," said Harris. "Their seizures can last from five minutes to hours. My daughter's longest seizure was two hours and 45 minutes."
Harris said the only answer is a medication called stiripentol, but it isn't approved by the FDA and not covered by TriCare, the military's health care plan.
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Soldier's Wife Fights For Daughter's Meds
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