Showing posts with label Sanfilippo syndrome. Show all posts
Showing posts with label Sanfilippo syndrome. Show all posts

Wednesday, May 6, 2009

Military TriCare denies son's chance to live?

Insurance denies boy second chance at life
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Hannah and Aiden Lopez are living on borrowed time. The two were born with Sanfilippo syndrome, sufferers of which typically don't live past their teens. Doctors say it may be too late to save Hannah, but a stem cell transplant may save Aiden. But the family's military insurance has refused aid

The news itself was like a miracle to the boy's family. That is until the bad news came: the family's military insurance provider has refused to pay for the $700,000 procedure.

"TriWest has determined that the requested service is a clinical trial and presently considered unproven. Therefore, the service is not a covered benefit under TRICARE," said Dr. Leonard Tamsky of TriWest HeathCare Alliance.
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