Showing posts with label neurology. Show all posts
Showing posts with label neurology. Show all posts

Tuesday, February 27, 2024

Neurosurgeon desperately needed in New England

Wounded Times

Kathie Costos
February 27, 2024

URGENT Neurosurgeon desperately needed in New England

I am posting this FOR THE LOVE OF JACK

After a couple of years of my husband's suffering, we finally had an answer as to why it was happening to him. He had an MRI that showed too much fluid in the ventricles of his brain. They suspected it was Normal Pressure Hydrocephalus.  

In between May and November, he was in and out of hospitals and rehabs. He was sent home with visiting nurses and for a while, he went into physical therapy as an outpatient. Eventually, we were told that nothing would work until he had a spinal tap to see if he improved.

We had to wait to see a Neurologist. That finally happened in November. He diagnosed my husband and it was as others suspected. The Neurologist was certain it was not brain shrinkage. He sent the MRI and report to a Neurosurgeon. We finally saw him in January.

First, he said he was sure it was brain shrinkage and ran down a list as to why nothing would help. I was not about to let my husband leave that office without knowing how the Neurologist was sure that was not his problem. Long story short, he excused himself, left the exam room, and returned to say he was willing to try a spinal tap.

The spinal tap was done last week and it helped but he needed a blood patch because of a really bad headache. That made him improve even more. I had hope again. That hope was crushed today when the Neurosurgeon called to tell me why a shunt wouldn't help and that all of a sudden his diagnosis was that my husband's nervous system was shutting down. He keeps changing what he's saying, so all trust in him is gone.

It is bad enough to see my husband suffer all this time, and then have to wait months for experts. Most of us have to deal with that. When you end up with an expert who can't decide what is happening or what to do about it, that's torturous. 

My husband went from going to the gym 5 times a week and riding his Harley, to not being able to walk and riding a wheelchair in two years. You know we've been together since 1982 and we'll be married for 40 years this year. This is the longest we've been away from each other. Watching him suffer is tearing me apart and that's why I haven't been able to focus on much else. My life and work are on hold because I'm falling apart. 

I feel blessed to have great people helping us get through all this and doing all they can to figure out what else they can do. If you've heard bad things about the VA, it isn't the VA doctors we have a problem with. It is out in the community because New Hampshire doesn't have a VA hospital. The VA has been wonderful. I don't know how I would have gotten through all this without them. 

I also feel blessed to have such loyal readers and I am praying someone knows a Neurosurgeon who can help my husband, or at least give us a second opinion that will make sense. I am desperate and pleading for help because if anyone deserves it, it is my husband. He's the reason why I've helped veterans and their families for over 40 years. All I do is because of him, so if you have found help with my books, videos, or posts, it is because of him. If I spent time with you on the phone and helped you find hope that you can heal, it was because of him. This time I need help from you for him. PLEASE HELP US FIND THE HELP HE NEEDS.

Saturday, November 25, 2023

Neurological Complications Following COVID-19 Vaccination

Wounded Times
Kathie Costos
November 25, 2023
“Things are not always what they seem; the first appearance deceives many; the intelligence of a few perceives what has been carefully hidden.” Phaedrus

What does this look like to you? Some sort of ancient drawing of a demon or the devil? It isn't what you may think it is. I was shocked when I discovered exactly what it is in the exam room of a neurologist. It is called the Circle of Willis.

The Circle of Willis is the joining area of several arteries at the bottom (inferior) side of the brain. At the Circle of Willis, the internal carotid arteries branch into smaller arteries that supply oxygenated blood to over 80% of the cerebrum.

This is the rest of the picture I saw.

 A search result showed that only 20-25% have an intact one.

Neurologists know a lot of things about how humans work. The thing is, they keep learning new things. One of them is how the Covid vaccine works. We don't know what they know unless we figure out what we're seeing, then we search for answers. I need to be clear on this. I have gotten the vaccine and boosters every time. I've only had one experience that I can complain about, but last year I got the flu shot at the same time. I felt like crap for two days. This year I got a booster and then waited 2 weeks for the flu shot. Everything is OK. Most people do fine with it but some people should be careful, especially if they have a neurological condition.

My husband does. We asked doctors before he got it because it seemed as if every time he did, I had to call 911. Each time the EMTs got him to the hospital, the doctors found something wrong with him, so they passed off his reaction to whatever they found, dismissing the vaccination connection. It didn't cause his condition but because of it, it got worse. 

We asked his doctors, the pharmacist, and a neurologist if it was OK for him to get the shot and they said they didn't hear anything about complications. The thing is, they just didn't hear about them but they exist.

 Neurological Complications Following COVID-19 Vaccination
Purpose of Review
A variety of neurological complications have been reported following the widespread use of the COVID-19 vaccines which may lead to vaccine hesitancy and serve as a major barrier to the public health aim of achieving protective herd immunity by vaccination. In this article, we review the available evidence regarding these neurological adverse events reported, to provide clarity regarding the same so that unfounded fears maybe put to rest.

Recent Findings
There is a greater than expected occurrence of severe neurological adverse events such as cortical sinus venous thrombosis, Bell’s palsy, transverse myelitis, and Guillain–BarrĂ© syndromes along with other common effects such as headaches following different kinds of COVID-19 vaccination. Precipitation of new onset demyelinating brain lesions with or without detection of specific antibodies and worsening of pre-existing neurological disorders (like epilepsy, multiple sclerosis) are also a matter of great concern though no conclusive evidence implicating the vaccines is available as of now.

We didn't know what was going on with his brain until this year. We just knew it was doing something to him that wasn't causing the other physical problems, but it made it worse.

I am still going to get the boosters because I'm OK with them. He isn't. If you have a neurological condition, check with your doctor first before you get the vaccine. Listen to the experts you trust and ask them about what you found in case they don't know about it. Too many of them don't seem to know because all this is new to them too.